More...

I don't want to be a pest, but I know how much you all care for this family.

Averi's carbon dioxide level is way too high, and her color isn't good. They've been making small changes here and there to figure out the right combo.

They are also giving her a blood transfusion.

Please pray for her little body to be able to exchange oxygen and carbon dioxide. Breathing... one of those simple things that most of us do without thinking, and probably take for granted at least most of the time.

First blood transfusion...

Averi had to get a blood transfusion last night due to the low levels of hemoglobin in her blood. As a result of all of the testing they do, they take blood out more quickly than she can replace it With all the meds that they have been giving her, Averi's blood started to become a little acidic--not to the point of concern--but it was definitely being watched. The transfusion has corrected this for now. They also put a PICC line in her leg to allow better administration of meds. (Similar to an IV, but it is more long-lasting and versatile.)

For now she is stable! Thank you for your continued prayers.