Wednesday, August 12, 2009

Our second appointment with the specialists August 12th

We headed out to Sacramento Maternal Fetal Medicine today. My head was swirling with the unknown. We were still waiting on the final amnio results and they wanted to check the baby's heart again. We went back and the tachnician again was really nice and thorough. The doctor came in and did the ECHO. She said the stomach was still up and part of the liver it was just hard to know how much. At this point we now know why "liver up" is so significant. The liver is a very dense organ and it makes lung growth against it very difficult. The baby's heart is pushed all the way to the right but looks sound in form and function. The baby's growth looks good and is right on target. She said as long as the amnio came back normal then they would go ahead and refer us to UCSF and if they did the fetal surgery we would transfer care and deliver there. She said they did have the ability to care for me and the baby, they had ECMO, the technology, and the experience the baby would need if UCSF did not do the surgery.

We then went to see the genetics counselor. She again asked if we had thought about the option of termination. I said it was NOT an option. She said that things moved alot quicker if it was a consideration because there was a cut off of 24 weeks, that's why she asked again. She then called UCSF and asked for the codes we would need to present to the insurance for approval. She said they did not have the final results on the amnio yet, it would probably be another day or two. More waiting, uggg. We left feeling positive that everything else, aside from the CDH and SUA, looked good.

God can do all things Matthew 19:26

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