Ok, tomorrow we are going to Sacramento Maternal Fetal Medicine and offically transferring care to them with delivery at UCDavis.
Does anyone have any suggestions on what to ask the doctors?????????
I am very nervous and know that things are gong to start moving along very quickly as I am wrapping up the 2nd trimester and moving into the 3rd trimester this week!!!!!!
Continue praying, keeping alert, and always thanking God. Colossians 4:2
Thank you all for your love, support, and continued prayers. I thank God for everyone He has brought into our lives everyday.
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Hi there,
ReplyDeleteWhen we were touring hospitals deciding where to have Jaxson cared for we asked the following:
1. What is your ECMO Philosophy? Meaning what precipitates needing it and how long will they keep a baby on it. We had some varied answers on this one. If we had chosen our hospital in Pittsburgh, based on their philosophy I think they would have put Jax up on ECMO in that first 48 hours as he was in respiratory distress big time. The folks at CHOP tried two things - they adjusted his chest tube and started Nitric. We don't know which thing did the trick or if it was both things, but he didn't have to go on ECMO.
2. How many CDHers do you treat on average in a calendar year? The more they treat typically the better they understand how to treat CDH.
3. Do you have any research projects ongoing for CDH? If so what are they.
4. Can you review some of your NICU policies?
5. I was planning on pumping, so I asked about support in that area - access to pumping machines, consultation by lactation specialists, etc.
6. We asked to meet with the surgeon that would be performing the repair, which was protocol for CHOP anyway.
I hope these help! Good Luck!
Sincerely,
Sarah
http://www.cdhsurvivorjaxson.blogspot.com
Thank you Sarah these are all great questions. I can't wait to read Jaxson's story!
ReplyDeleteSorry, I don't know what questions to suggest for preparing ahead of time. Katie was not diagnosed until birth. Wow, BIG surprise!!
ReplyDelete~Beth (Mom of Katie, CDH survivor 4/9/09)
http://katiebethcole.blogspot.com/
That's ok Beth no problem. Thanks for reading our blog. I have read some of Katie's story. It has all been helpful, all the different stories of CDH babies, and helps me to know what to expect, what to ask, and what to look out for.
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