I don't have much of an update. They changed the ECMO circuit today, and they have been having some very important talks with doctors as to next steps. Things are very, very tenuous, and your prayers are needed more than ever.
A "circuit change" is when they replace all the tubing and primer blood used in the ECMO. They remove baby from ECMO for like a minute and reconnect her with the new stuff. Sometimes it can cause a baby to get a little worse before she gets better, since they often have an inflamatory response to the new tubing and equipment that her blood is coming in contact with. In Averi's case, her oxygen levels were better since the circuit change. Usually a circuit change is necessary every 7-10 days.
One additional tidbit is that her lungs are looking better. She is having blood pressure and heart issues. (Something to do with the right side of the heart, but I don't know any more than that!) Additionally, the liver continues to be a concern.
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I pray for you all
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