When we have had to adjust/modify/change something so it works for us we call "it" Gaynorized. Hope you enjoy the ride! We have learned to find joy through loss and love.
Wednesday, December 16, 2009
Wednesday night (16 days old-Day 5 on ECMO)
Averi started peeing again, but she's not fluid negative yet. The doctor said the plan is to adjust the ventilator and see what her lungs do. They also plan to do an ultrasound on Friday to check her pulmonary hypertension.
Congenital Diaphragmatic Hernia (CDH) is a birth defect that occurs when the diaphragm does not fully form, allowing organs to enter the chest cavity preventing lung growth. CDH strikes 1 in every 2500 babies - 1600 babies each year in the U.S. alone. 50% of these babies do not survive. The cause is not known.
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